Fullforceeventsltd
02-01-2013, 05:47 PM
I am after some help in setting up a forum. This is not at all DJ or disco related.
I have recently been ill and now have been diagnosed with a very rare autoimmune disorder. When getting diagnosed with the condition I found that there was not a lot of information available to people suffering from the disorder. Even the medical specialists said a lot of the information on the web is outdated and advised not to read it as it would scare yourself to death with some of the info that's out there.
I would like to try and set up a support forum people that suffer from this condition to help, advise and educate. Because the condition is so rare, its commonly misdiagnosed and many medical people have never ever come across it or even heard of it. Many sufferers often end up having to educate their own GP's.
The condition is estimated to effect on 1 or 2 people in a million, there may be more but as the symptoms are often misdiagnosed by medical staff that are not aware or come across the disorder.
I have unlimited hosting already courtesy of Alex and hostsphere and would like to try and set up a forum using phpbb.
There are currently a couple of support groups that I am a member of but they are more focused for America.
If possible and with some help, I would like to try and set something up that is more UK focused where members can get help and support from other sufferers.
I have no idea where to start in something up like this and I wondered if anyone would be willing to offer some help or support to try and get something set up.
You can email me direct at [email protected]
Thanks in advance.
Steve
I have recently been ill and now have been diagnosed with a very rare autoimmune disorder. When getting diagnosed with the condition I found that there was not a lot of information available to people suffering from the disorder. Even the medical specialists said a lot of the information on the web is outdated and advised not to read it as it would scare yourself to death with some of the info that's out there.
I would like to try and set up a support forum people that suffer from this condition to help, advise and educate. Because the condition is so rare, its commonly misdiagnosed and many medical people have never ever come across it or even heard of it. Many sufferers often end up having to educate their own GP's.
The condition is estimated to effect on 1 or 2 people in a million, there may be more but as the symptoms are often misdiagnosed by medical staff that are not aware or come across the disorder.
I have unlimited hosting already courtesy of Alex and hostsphere and would like to try and set up a forum using phpbb.
There are currently a couple of support groups that I am a member of but they are more focused for America.
If possible and with some help, I would like to try and set something up that is more UK focused where members can get help and support from other sufferers.
I have no idea where to start in something up like this and I wondered if anyone would be willing to offer some help or support to try and get something set up.
You can email me direct at [email protected]
Thanks in advance.
Steve